Girl Eats 15 times per day !
July 11th, 2010 by Mike | No Comments | Filed in FrickMeOut, Weird
The syndrome that I am living with is so rare that it is to this day undiagnosed. There are only 3 people in the world including myself who have it. Amanda, the oldest of the three is in her 30’s and lives with her husband Richard in England. Abigail the youngest is 13 and lives in Austin as well. I’ve seen many different research doctors throughout my life and there just aren’t any answers. What the syndrome causes is that I’m not able to gain weight. I’m 19 years old right now and only weigh about 60 lbs. I have zero percent body fat as well. I’m also blind in one eye and have limited vision in the other.
I eat whatever I want all day long and just can’t keep the pounds on. The syndrome is so puzzlng because it fits characteristics of different syndromes but doesn’t fit it to the point where I can be diagnosed with a certain one. For example, one of the big ones is progeria. I have a lot of the same physical features as kids with progeria. Like the pointed nose, small mouth, and appearing with aging skin. The difference is that progeria is terminal and has a lot more complications. My only thing is the characteristics that I just listed.









